PCOS and Adenomyosis my experience

 Let me just say this is not for the weak. PCOS and Adenomyosis is terrible. You are miserable. Your hormones are out of whack, your anxiety ramps up and you have this doom feeling and become emotional. Intercourse hurts and it feels like you have something that is heavy on your pelvic and that it is going to fall out or fall through. 

You're hair falls out. You're weight is going up and down and you cannot control it. It does not matter if you cut calories or even diet because it is hard to loose weight.

 Everything is inflamed and it hurts. It also feels like you are burning on both sides of your stomach and it is not a pleasant or fun feeling. 

You're periods are heavy and pad soaking and the pain that you experience from the cramps are so bad it has you in tears and makes it to where you do not want to move.

You're always bloated and no matter what you do it does come back.

You cannot eat a full meal because it will make it seem like you are full and you have to eat small portions at a time so you are full and then a few hours later you are hungry again. 

It can be hard to poop because the weight of everything is pressing on a bowel and it makes it feel like it backed up and constipated. 

You're skin is oily, you can or cannot have acne, I normally do not have acne but sometimes it does appear for a day or two and disappear.

You can grow hair pretty much all over your body and even facial hair that is thick and all this hair will end up coming back quickly if you shave it off. 

You can end up craving sugar and sweets because of the insulin resistance. You can also get dry patches on skin on your wrist and ankles from it also. ( I use Carrot tree oil for mine and then I use gold bond lotion and it makes it soft again.)

This is rough. Something that started out as pain, nausea, vomiting and diarrhea has finally have a name to it. Adenomyosis and it is the worst. 

If you have to poop, it can cause a lot of pressure and make it so you have uncontrollable diarrhea  because of the pain and pressure and not being able to hold it does happen especially if you are like me with IBS on top of it. 

I was taking Advil, Pamperin and heating pad. ( They have ones you can wear.)

It also does cause insomnia and a lot of sleepless nights! 

To find the Adenomyosis, I had to do a detailed pelvic ultrasound because with all the CT scans they did not find it. They found what looked to be a Fibroid on top of my uterus and I had to get a OBGYN appointment to find what it was and this was it. They gave me three options one was hormone IUD or birth control but they said it was to late for that. 

Another was a hysteroscopy & endometrial ablation or a total hysterectomy in which due to everything being fused together we went the hysteroscopy & endometrial ablation route and it kept me down for about a month due to pain, and infection but after that I am feeling better and feeling like I have my life back. 

If the adenomyosis does come back it can take months or years and then they are going to do a Ovarian Vein Embolization and that is where they go through the groin and pretty much stop the blood from going there so it does not grow back.  

I was taking Fenugreek. Fenugreek helped with balancing hormones and keeping everything aligned including pcos and slowed down hair growth but I wanted something more.

I ended up also taking  Myo Inositol and D-Chiro Inositol with Vitamin D3 + Ashwagandha by intimate. This helps with PCOS and the ovary in which works great and gives you a little boost however you have to take 4 of these daily and I dislike having to do that and I was taking other supplements on top of it. 

I now take Parrox Myo Inositol Supplement, D-Chiro Inositol Folate, DIM, Vitamin D3, B12, K2, Chromium, Bioperine, Ceylon Cinnamon, Zinc, Ashwagandha, Chasteberry, Magnesium, Berberine. It is an all in one capsule and it has everything I need for my PCOS, my Adenomyosis and other things. I only have to take 3 of these day and it makes a difference. I even feel better taking this and I do not have to take 5 different supplements now I can just take this one. 

Get your fenugreek here! They have different mgs of it! 

Parrox Myo inositol all in one here!

 

Gaslight by Doctors

 At first, it was fine. Everything was fine even though my intuition made me uncomfortable of that office.

 It was until the procedure was done was the issue. The doctors and nurses are gaslighting me. First the office did not tell me what I was looking for or signs of infection. 

Then I was having pains but they said oh its normal to have cramping and everything else when I reached out. 

Then another doctor answered my doctors messages talking about if your in pain and it is to much to stand go to the hospital and this was before the 2 week appointment. I was trying to get answers in which I did not.

Then, I messaged again recently that hey the antibiotics is not working. I do not feel any better just for them to pretty much gaslight me and tell me that hey we expect cramping. I'm not even cramping. I am in pain like it is throbbing from the infection style type pain. 

Like the doctor didn't even do the swob test. He only did a UTI test but he did not even bother doing the swob test for BV. All he did was clear me from restrictions. He also did not prescribe or treat anything for my PCOS in which I have this on top of adenomyosis.

 I have been suffering since I came home and it has almost been a month. February 14th will make one month. They said I can feel effects from 1 month all the way up to 3-6 months. He did not mention this at the appointments prior to the procedure. This is not right. 

They said this would be a quick and easy process. They said that I would only be down for about a week or two. 

No one said the heal time would be months. No one really explained anything to me except the endometrial ablation. He said he is going to go in, dilate the cervix, use a device to go inside and burn away at the adenomyosis tissue. He did not really explain anything else after the fact but once we got to the 2 week check up then he let on that it can actually take months to heal. 

 The hysterectomy, I got knew about. I was going to be down for 4-6 weeks as if I had a child but this. I did not even get incisions and I am apparently going to be down for a lot longer. 

They won't even schedule me in but want me to go to the hospital for it. 

According to google, I was suppose to contact my doctor and they were suppose to switch antibiotics since it does not feel it is working. 

I am schedule to see another OBGYN that I scheduled months ago before I went to this office and hopefully I can get some relief but I am going to end up going to the ER for this though. 

In time like these you have to become your own advocate. You have to speak up, reach out and get answers you needing and treatment you deserve. If you do not feel like something is right, you are going to have to do something about it. Speak up and Speak out. 

Endometrial ablation, Bacterial Vaginosis, vaginal Infections |Women vaginal health

 Something they do not tell you after the Endometrial ablation  is that you may end up getting an infection and trust me it is normal. When you go to the bathroom and wipe, there will be what I call the rainbow. 

It is brown, pink and yellow, and or green. If you see any kind of yellowing or light brown that looks yellow or green, just go ahead and message your doctor or go get seen. 

This means you got BV. Bacterial Vaginosis  is completely normal however due to the strong iron smell and the smell of rot you cannot really tell if you have it or not.  

My doctor decided to go ahead and put me on the
antibiotics because as he states, he cannot go in there to check for infections because the cervix closed and there is no actual testing because it is in the uterus and not the vagina this time. I had a few different cases of BV. 

It is not caused by sex all the time, it can be caused by anything. It is where the good bacteria does not stop making and cause an over growth. It can give you discharge of off-white, yellow, gray and it smells really foul and fishy because your pH balance has been thrown off.

 It will also make you really itchy between the lips and you will end up needing some vagisil or something to make it not itchy. 

I normally would use vaginal suppositories when this happen to help clear it out but because I just had surgery I could not put anything in there nor use anything. The vaginal suppositories has Boric acid in it to help get rid and stop the bacterial growth. 

I normally use the vagibiom suppositories because they do not burn me like one that I took before. 

Get your vaginal suppositories here! 

Adenomyosis and the toll on the body

 No one tells you how bad it is with adenomyosis. No one tells you how your emotions are going to be everywhere and anything can set you off. 

No one tells you how much pain and pressure you will be in nor how much trouble it can give you. 

You can go from having periods to not having periods to having spontaneous periods to the point you never know when they will come on. You can also have heavy bleeding and lots of cramping with it and if you have PCOS on top of it like I do, it is a different ball game and makes everything so much tougher. 

No one tells you that you can  have nausea, vomiting and diarrhea or constipation with this because your uterus can press on your intestines and or bladder and give you unitary incontinence and then suddenly your bowels will work randomly. 

You will also have back pain and everything feels like its falling out and your uterus feels like its going to fall out from the weight of it in which I was told it could fall out. 

No one tells you that you will end up looking 6 months pregnant and gain weight that you cannot loose no matter how hard you try but yet you try to calorie count and do odd and ends to loose weight and it does not work. 

With adenomyosis, your mental health will go horrible. You feel like you are isolated and alone when you are not. You're anxiety and depression are at an all time high. Your legs become restless and your body will ache. 

Everything feels like its wrong and the world is crashing down on you. Everything you do feels wrong. It makes you feel worthless and a failure and so much more and just causes over all hormone madness because you are happy, you can be sad, depressed, irritated and all kinds of other moods. 

You can end up having insomnia with it and or sleeping to much. There is a lot to know about adenomyosis.  

The pain that I have felt and dealt with for about 4 years now is unbearable at times. It hurts on my lower left abdomen to the point we thought it was my colon but it is not. I went GI surfing and Primary doctors surfing to be told its not GI related. I have been dealing with bloating, missing periods, nausea, vomiting and diarrhea and now we know why and what is happening. 

The only treatments they will give is a IUD in which I was told it would not work for me but they still offered, a HIFU in which is a device that goes inside of your uterus and burns the tissue and takes 1-2 days to recover in which it is a 85% chance of working and it can come back or an hysterectomy and it takes 4-6 weeks to recover but with the hysterectomy it is 100%  since the uterus is being removed. 

adenomyosis

 I would not wish this pain on anyone. I woke up with what feels to be my uterus doubled the size. I am having back pain and my groin feels like something is going to fall out of it. 

It feels heavy and pressure. It feels as if you're in never ending labor and the baby is ready to come out but there is no baby there. The pain is kind of bad but not bad at the same time. 

The pooping is what gets me. One minute your constipated the next you have diarrhea all because the organs are getting pressed on and squeezed. Also my ovaries burns all the time.

 
I feel like something is going to fall out also because the pain and pressure. Sometimes I have no appetite other times I do and it's a messed up situation. 

These ultrasounds are from my actual scans. 

Here is what it started out like Click here to go to the beginning.

I am finally at peace now knowing what is causing this and what is happening. Hopefully after 3 years of suffering, I can get better and find some work but until then, if you would like to help me out you can buy something from my links and or tip to my tip me. 

Update! adenomyosis

They found out I have adenomyosis on top of everything and they are planning on doing surgery because of everything that is going on. In which my uterus does not shed like it is suppose to and all the skin and tissue ends up growing internally in which can cause pain, pressure, nausea vomiting, weight gain, weight loss, it makes you bloated to look as if you are pregnant. I am also on the higher scale than the normal one in which it is bad so surgeon is more than likely going to remove it.

It also makes you not have a period. It feels your groin feels heavy and have a lot of pressure so you cannot have inner course because the uterus itself swells up and grows bigger than what it is suppose to be and it can also feel like it is going to fall down or out.

 It also can make you have painful periods, heavy bleeding, loss of appetite, urine incomitances and bowel change habits from soft and nice to constipation to diarrhea. It can also be difficult to loose weight with this and if you have PCOS on top of it it is even worst. 

They found it in ultrasound. It looks like fish netting on my uterus wall and it was a lot of it. 

We have finally diagnose my mystery illness from the past 3 years and hopefully when this is done I will feel way better. 

Here is what it started out like Click here to go to the beginning.

I am finally at peace now knowing what is causing this and what is happening. Hopefully after 3 years of suffering, I can get better and find some work but until then, if you would like to help me out you can buy something from my links and or tip to my tip me. 

Get a 3rd-4th opinion for your health

Hi, I am Lovely and I have been looking for answers about my pain, nausea, vomiting, diarrhea since 2021 and I finally am getting them.

What started out to be pain in the lower left abdomen, nausea, vomiting has gave me the run around. I have been ER surfing, Primary surfing, OB surfing trying to get answers from an unknown illness. No one knew what it was. I was violently ill. It started as nausea, vomiting and diarrhea, fatigue and pain down the left side by my colon. Doctors pushed me to GI, GI did a colonoscopy, endoscopy and biopsy and said it wasn’t us and pushed me away.

I went to the hospital for pain and they saw a cyst on my ovary and told me to follow up with my OBGYN back in 2022 in which she brushed me off and kind of laughed at me but she did diagnosed me with PCOS told me it was fine. I ended up going to primary and then they referred me out to GI in 2024 and that’s when I got the scopes.

I ended up going to a primary and she tried to put me on Prozac. I ended up dropping her and then went to the hospital and then found another primary.

He tried Lizess cause everyone thought it was GI related. Went to another hospital to find out my ovary was twisted back in 2022 but by the time I went back it untwisted itself.

The symptoms kind of eased off enough for me to deal with it for the rest of 2024, until recently.

I stayed in constant pain and had pressure in my groin and pelvic. It was like I had to poop really bad and it would not come out. It was a lot of discomfort. I was bloating, my weight gain was going up and down and no matter what I did.

  Actual image of my ultrasound

I ended up going to another primary and then she ordered an ultrasound but the ultrasound could not find anything and ended up going to the hospital and they did a CT scan and found my Fibroid so I ended up switching OBGYN and she told me it’s not in your head it’s actually happening and that I have PCOS on top of it all that it was going to cause pain and be difficult.

She ended up doing a pelvic ultrasound and we actually found out that I have adenomyosis which is the opposite of endomitosis. Adenomyosis does not allow the uterus to shed the way it is suppose to meaning you don’t have periods as often and when you do it is heavy and painful. Everything grows inward and nothing sheds causing the uterus to weigh down and enlarge and causes all kinds of issues because it presses on the bowels and other things making it so that you cannot poop and things back up causing nausea, vomiting and diarrhea.

My next step is finally talk to the surgeon November 26th in hopes he will take it out.

Hopefully after surgery I can finally get to work since I have not been able to since the beginning of 2021.

I am getting Surgery. I am getting a hysterectomy. It is scheduled on January 14th 2026.

Here is what it started out like Click here to go to the beginning.

I am finally at peace now knowing what is causing this and what is happening. Hopefully after 3 years of suffering, I can get better and find some work but until then, if you would like to help me out you can buy something from my links and or tip to my tip me.