PCOS and Adenomyosis my experience

 Let me just say this is not for the weak. PCOS and Adenomyosis is terrible. You are miserable. Your hormones are out of whack, your anxiety ramps up and you have this doom feeling and become emotional. Intercourse hurts and it feels like you have something that is heavy on your pelvic and that it is going to fall out or fall through. 

You're hair falls out. You're weight is going up and down and you cannot control it. It does not matter if you cut calories or even diet because it is hard to loose weight.

 Everything is inflamed and it hurts. It also feels like you are burning on both sides of your stomach and it is not a pleasant or fun feeling. 

You're periods are heavy and pad soaking and the pain that you experience from the cramps are so bad it has you in tears and makes it to where you do not want to move.

You're always bloated and no matter what you do it does come back.

You cannot eat a full meal because it will make it seem like you are full and you have to eat small portions at a time so you are full and then a few hours later you are hungry again. 

It can be hard to poop because the weight of everything is pressing on a bowel and it makes it feel like it backed up and constipated. 

You're skin is oily, you can or cannot have acne, I normally do not have acne but sometimes it does appear for a day or two and disappear.

You can grow hair pretty much all over your body and even facial hair that is thick and all this hair will end up coming back quickly if you shave it off. 

You can end up craving sugar and sweets because of the insulin resistance. You can also get dry patches on skin on your wrist and ankles from it also. ( I use Carrot tree oil for mine and then I use gold bond lotion and it makes it soft again.)

This is rough. Something that started out as pain, nausea, vomiting and diarrhea has finally have a name to it. Adenomyosis and it is the worst. 

If you have to poop, it can cause a lot of pressure and make it so you have uncontrollable diarrhea  because of the pain and pressure and not being able to hold it does happen especially if you are like me with IBS on top of it. 

I was taking Advil, Pamperin and heating pad. ( They have ones you can wear.)

It also does cause insomnia and a lot of sleepless nights! 

To find the Adenomyosis, I had to do a detailed pelvic ultrasound because with all the CT scans they did not find it. They found what looked to be a Fibroid on top of my uterus and I had to get a OBGYN appointment to find what it was and this was it. They gave me three options one was hormone IUD or birth control but they said it was to late for that. 

Another was a hysteroscopy & endometrial ablation or a total hysterectomy in which due to everything being fused together we went the hysteroscopy & endometrial ablation route and it kept me down for about a month due to pain, and infection but after that I am feeling better and feeling like I have my life back. 

If the adenomyosis does come back it can take months or years and then they are going to do a Ovarian Vein Embolization and that is where they go through the groin and pretty much stop the blood from going there so it does not grow back.  

I was taking Fenugreek. Fenugreek helped with balancing hormones and keeping everything aligned including pcos and slowed down hair growth but I wanted something more.

I ended up also taking  Myo Inositol and D-Chiro Inositol with Vitamin D3 + Ashwagandha by intimate. This helps with PCOS and the ovary in which works great and gives you a little boost however you have to take 4 of these daily and I dislike having to do that and I was taking other supplements on top of it. 

I now take Parrox Myo Inositol Supplement, D-Chiro Inositol Folate, DIM, Vitamin D3, B12, K2, Chromium, Bioperine, Ceylon Cinnamon, Zinc, Ashwagandha, Chasteberry, Magnesium, Berberine. It is an all in one capsule and it has everything I need for my PCOS, my Adenomyosis and other things. I only have to take 3 of these day and it makes a difference. I even feel better taking this and I do not have to take 5 different supplements now I can just take this one. 

Get your fenugreek here! They have different mgs of it! 

Parrox Myo inositol all in one here!

 

13 days Post op

 Let me just say, I am having pelvic and lower belly pain. I am now lightly bleeding but I was having brown discharge when wiping and it smelled or iron. 

My appointment is Thursday and I have some questions for them. I did message them in the portal sometime last week and they said the pain is expected and that the light pink blood when wiping is also expected and if it gets to the point I can no longer take it just go to the ER just so they can rule out infection.

 This is the longest time I have bleed for. I have been walking, I have been doing thing around the house expecting that I would be better this far out but honestly I feel horrible. I am nauseated, I have the sweats.

 Every time I try to take my temperature it ranges between 97.6 and 98.9 and there is no sign of a fever but I feel like I am running one and hot. I am suppose to only do light duty and not lift anything until the 2 week appointment but the hospital failed to tell me that. They told me I could start easing into things and I should be fine to do things in a week.

The doctors office told me this was going to be an in and out thing and that I should start feeling better in a week but let me tell you, I do not feel better at all. When I first got it done, I was like ah okay. This is a breath of fresh air but now everything is hurting again. I am leaking brown and pink and I am just over it. 

I just wished that I feel better and things were not this what but they are. I have to wait 6 months to know if the Uterine ablation worked or not and if it did not then I am going to have the uterine artery embolization. 

I thought I would be so much better and feel so much better but no I don't. I feel worst and everything feels like it is pressing down again. I went this route because the surgeons fear that everything was fussed together due to scar tissue and he was afraid that he would end up taking out my bladder instead and he even put in the notes that I might of ended up on chronic cauterization because he might take my bladder during hysterectomy instead of my uterus.  

I have been told I will be in pain for weeks into months and that I can shed my tissue for about 3-6 months. 

Adenomyosis and the toll on the body

 No one tells you how bad it is with adenomyosis. No one tells you how your emotions are going to be everywhere and anything can set you off. 

No one tells you how much pain and pressure you will be in nor how much trouble it can give you. 

You can go from having periods to not having periods to having spontaneous periods to the point you never know when they will come on. You can also have heavy bleeding and lots of cramping with it and if you have PCOS on top of it like I do, it is a different ball game and makes everything so much tougher. 

No one tells you that you can  have nausea, vomiting and diarrhea or constipation with this because your uterus can press on your intestines and or bladder and give you unitary incontinence and then suddenly your bowels will work randomly. 

You will also have back pain and everything feels like its falling out and your uterus feels like its going to fall out from the weight of it in which I was told it could fall out. 

No one tells you that you will end up looking 6 months pregnant and gain weight that you cannot loose no matter how hard you try but yet you try to calorie count and do odd and ends to loose weight and it does not work. 

With adenomyosis, your mental health will go horrible. You feel like you are isolated and alone when you are not. You're anxiety and depression are at an all time high. Your legs become restless and your body will ache. 

Everything feels like its wrong and the world is crashing down on you. Everything you do feels wrong. It makes you feel worthless and a failure and so much more and just causes over all hormone madness because you are happy, you can be sad, depressed, irritated and all kinds of other moods. 

You can end up having insomnia with it and or sleeping to much. There is a lot to know about adenomyosis.  

The pain that I have felt and dealt with for about 4 years now is unbearable at times. It hurts on my lower left abdomen to the point we thought it was my colon but it is not. I went GI surfing and Primary doctors surfing to be told its not GI related. I have been dealing with bloating, missing periods, nausea, vomiting and diarrhea and now we know why and what is happening. 

The only treatments they will give is a IUD in which I was told it would not work for me but they still offered, a HIFU in which is a device that goes inside of your uterus and burns the tissue and takes 1-2 days to recover in which it is a 85% chance of working and it can come back or an hysterectomy and it takes 4-6 weeks to recover but with the hysterectomy it is 100%  since the uterus is being removed. 

Update! adenomyosis

They found out I have adenomyosis on top of everything and they are planning on doing surgery because of everything that is going on. In which my uterus does not shed like it is suppose to and all the skin and tissue ends up growing internally in which can cause pain, pressure, nausea vomiting, weight gain, weight loss, it makes you bloated to look as if you are pregnant. I am also on the higher scale than the normal one in which it is bad so surgeon is more than likely going to remove it.

It also makes you not have a period. It feels your groin feels heavy and have a lot of pressure so you cannot have inner course because the uterus itself swells up and grows bigger than what it is suppose to be and it can also feel like it is going to fall down or out.

 It also can make you have painful periods, heavy bleeding, loss of appetite, urine incomitances and bowel change habits from soft and nice to constipation to diarrhea. It can also be difficult to loose weight with this and if you have PCOS on top of it it is even worst. 

They found it in ultrasound. It looks like fish netting on my uterus wall and it was a lot of it. 

We have finally diagnose my mystery illness from the past 3 years and hopefully when this is done I will feel way better. 

Here is what it started out like Click here to go to the beginning.

I am finally at peace now knowing what is causing this and what is happening. Hopefully after 3 years of suffering, I can get better and find some work but until then, if you would like to help me out you can buy something from my links and or tip to my tip me. 

Women MENSURAL products ARE NOT HEALTHY

 Hi guys, I would like to bring up a lot of points about women mensural cycle products. Most of the products that they are selling to us and telling us are healthy and safe actually are not. If you leave a tampon into long it causes toxic shock syndrome. Most of the things we stick inside our body and are using is not safe. The chemicals that it is made of is harming us can causing so much issues that we would never suspect it is them. Tampons and or women mensural products can cause PCOS, endometriosis, PMDD, PMS and so much more including cancer. Cancer is mutated cells that are caused from reaction to chemicals. 

 I am not telling you to not use the products but be careful and be mindful of what you are putting in your body and please do research to help you know more about things that can cause it. 

If you are looking for alternatives check out this company they have washable pads and more

BE PERPARED PERIOD

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