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Wednesday, August 5, 2026
GOUT with one kidney
Everything hurts and it makes life difficult. It can attack the hands, knees, ankles, toes, fingers, knuckles, elbows, ribs, back, arms, legs, pretty much anywhere it can get into and it will put you down.
With gout, you get these things called Tophi's which are the gout crystals coming to the surface of your skin and
you can see them. They look like white blisters however, they can pop randomly if you knock it onto something and the one thing they are prone to doing is becoming infected and draining.
Gout is nothing to play with. One day you are feeling fine and able to move and walk, the next, you are down in so much pain you cannot handle it begging for relief.
They switched my husband's Allopurinol and it made everything worst. They bumped him up to 300 and his flare ups have been much worst but once he stopped taking them it got a little bit better. He is also on Colchicine everyday because nothing is helping it. He is also on prednisone daily and a few other medications but none of it is really helping.
They are trying to get him approved for Krystexxa through insurance which is an infusion that helps break down and clear out the uric acid but it is a major fight with them and keep getting denied.
This pretty much will give his life back but the thing is with this is that they give you a steroid and allergy medications every treatment to help your body fight it. Not only that it is every two weeks you have to go through it.
We have learned that fish and seafood is not your friend along with a lot of other foods. Tart of Cherry can help with it also and that black walnut can help it also. Be sure to keep things like Nerve which is a roll on tincture oh an supposedly anything with cayenne pepper tincture can help also.
Heating pad is your friend so is elevation. Ice can cause a lot more pain and be sure take it easy and rest. Oh and things that support you such as a a bed rail that can help you sit up, some kind of urinal because getting up to go to the bathroom is sometimes difficult some kind of wide toed shoe, and a shoe that is easy to get on and off.
Be sure to stay hydrated because uric acid leaves through peeing so body armors and water and green tea is good for this.
You also may need help so be sure to reach out when you need it and make sure you have a good support system.
I'm always have to be the runner to help because he can't do it and he needs to eat and he needs his urinal cleaned. His flare ups last a few days to a week or two and then he is good for a while and then he is back down about a month or 2 later.
Flare ups are nothing to play with and they can put a person down for days at a time.
Also let me say, disability is hard to get but he qualifies for it but he is still working trying to make ends meet since bills never stops because it takes up to 3 months for him to start receiving.
Friday, February 6, 2026
Wide Toe Box Mens Walking Sneakers
These shoes have wide box so he is able to stretch his feet more and and not have the top of the shoe compress into his feet especially when they swell from the gout flare ups and attack.
These shoes are great because he has to use a cane and walker and he ends up having to drag his foot because sometimes it hurts to bad to actually walk on it.
These shoes have good grip and that is what I wanted for him so he would not slide.
If you are looking for a simulator pair, I highly suggest Fitville. They specialize in lightweight walking shoes that have wide toe boxes and are perfect for those who feet swell or have gout. Their shoes are just the same! They also have shoes that has a close on top instead of the tying it. I highly recommend these shoes also!
Wednesday, July 9, 2025
Worrisome: RA, Gout, Kidney disease
He also was only born with one kidney and he hangs out between stage 2 and stage 3 kidney disease in which his body cannot process everything correctly and it gets to the point sometimes he has to go to the hospital to get treatment and fluids to help his kidney filter things out and raise his GFR levels in which this is kind of scary sometimes. He is currently on Medicaid and because of this we do not have to worry about his medications.
It is hard on him somedays and he struggles a lot but that does not stop him. He hurts all over his body and his arms, elbows, knees, feet and hands swell up to the point he cannot move it and it is a challenge for him some days but sometimes he goes weeks without swelling but it depends on what he does and if he stands or walks for long periods of time.
He also works full time but he is trying to find a part time job that allows him to take days off or is just flexible with him and that is hard to do. The insurance his company offers is not the greatest not just that, he oftentimes have to switch companies because his contracts ends or they end up laying off because they do not need everyone that they hired.
He also cannot get disability even though we filled it out and even sent everything they wanted and needed along with signing medical release forms and they still denied him because they would never come around and accept it and it was a long hassle with it. No one can just go without the money and funding they need to make sure ends are met and the bills are paid. The way they have the disability set up is horrible because it takes years for them to ever get back to you and approve or deny you and you can end up loosing everything just waiting on a response and often times they end up denying you and you end up having to find a lawyer to get help with it so that they will approve it and this also becomes a prolonged process.
My hope and dream is to be able to make enough money to help him the best that I can so that he does not have to worry about bills or anything else. I want him to be able to take breaks and time for himself instead of forcing himself to work for a company that is just going to replace him when something happens.
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Disability and Lawyers
Disability in the USA is hard to get because you have to prove that you are disable and a lot of illnesses and conditions still do not make...