Worrisome: RA, Gout, Kidney disease

With recent events happening in the world it has became kind of worrisome with everything. My family is a low income family with three kids. My husband is on Humira for his rheumatoid arthritis and he has been diagnosed with gout. 

My husband also has to go back to the rheumatologist every two to three month to make sure his labs are good and everything is functioning okay.  

 He also was only born with one kidney and he hangs out between stage 2 and stage 3 kidney disease in which his body cannot process everything correctly and it gets to the point sometimes he has to go to the hospital to get treatment and fluids to help his kidney filter things out and raise his GFR levels in which this is kind of scary sometimes. He is currently on Medicaid and because of this we do not have to worry about his medications.

 It is hard on him somedays and he struggles a lot but that does not stop him. He hurts all over his body and his arms, elbows, knees, feet and hands swell up to the point he cannot move it and it is a challenge for him some days.

He also works full time but he is trying to find a part time job that allows him to take days off or is just flexible with him and that is hard to do. The insurance his company offers is not the greatest not just that, he oftentimes have to switch companies because his contracts ends or they end up laying off because they do not need everyone that they hired. 

He also cannot get disability even though we filled it out and even sent everything they wanted and needed along with signing medical release forms and they still denied him because they would never come around and accept it and it was a long hassle with it. No one can just go without the money and funding they need to make sure ends are met and the bills are paid. The way they have the disability set up is horrible because it takes years for them to ever get back to you and approve or deny you and you can end up loosing everything just waiting on a response and often times they end up denying you and you end up having to find a lawyer to get help with it so that they will approve it and this also becomes a prolonged process. 

My hope and dream is to be able to make enough money to help him the best that I can so that he does not have to worry about bills or anything else. I want him to be able to take breaks and time for himself instead of forcing himself to work for a company that is just going to replace him when something happens. 

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Problems with PCOS

 With PCOS they do not tell you how bad it is. It can make your days hard. They do not tell you you will be in pain most of the days until the cyst pops and then you will be in more pain for a few more days. They do not tell you that anything can aggravate it, your moods will be at full force swinging and your anxiety will be at an all time high. They do not tell you that it can cause seizures that I have been experiencing due to hormone changes and nothing nothing can really help with the hot flashes. It is almost like menopause. 

You will gain a lot of weight but then they expect you to some how loose it when you don't even know how you got it. They will try to push you on birth control thinking that is going to help it but you are just going to gain more weight and make them money off of it every time you go get the refills. 

They do not tell you the ups and downs about it. They don't really tell you anything about it. They say its where your eggs fail to release and it causes build up in fluids. They say you can notice it when you miss a period well, I missed 3 years worth and took multiple pregnancy tests when my spouse has a vasectomy trying to make sure we are in the clear.

 I even went to the hospital multiple times, primary multiple times and even got a second opinion and some how everyone missed it they all were thinking I am pregnant. I even went to my OBGYN the first time and she didn't do anything nor checked me. She won't even do a scan but says oh it's not good it can become cancer if you don't have a period for so long even though I went to her and others multiple times trying to get help.

I threw up all of my supper last night which was a salad because it was light. They don't tell you that it will happen. They won't tell you had bad it will hurt and how when you move when its hurting it feels like you are ripping and its folding down feeling like its going to fall out. When I first went for this feeling they found my cyst but when I went for it again they did another scan on it and it gotten bigger.

I know, I know peoples bodies are different and different things will happen but its just weird how it happens. 

 Did you know the cyst will make you look pregnant? That is when they decide to go in and take it out they won't do anything for it when its there but they wait until it gets hazardous and can cause harm. 

They tell you to just take over the counter pain meds when it happens and rest. 

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