Worrisome: RA, Gout, Kidney disease

With recent events happening in the world it has became kind of worrisome with everything. My family is a low income family with three kids. My husband is on Humira for his rheumatoid arthritis and he has been diagnosed with gout. 

My husband also has to go back to the rheumatologist every two to three month to make sure his labs are good and everything is functioning okay.  

 He also was only born with one kidney and he hangs out between stage 2 and stage 3 kidney disease in which his body cannot process everything correctly and it gets to the point sometimes he has to go to the hospital to get treatment and fluids to help his kidney filter things out and raise his GFR levels in which this is kind of scary sometimes. He is currently on Medicaid and because of this we do not have to worry about his medications.

 It is hard on him somedays and he struggles a lot but that does not stop him. He hurts all over his body and his arms, elbows, knees, feet and hands swell up to the point he cannot move it and it is a challenge for him some days but sometimes he goes weeks without swelling but it depends on what he does and if he stands or walks for long periods of time.

He also works full time but he is trying to find a part time job that allows him to take days off or is just flexible with him and that is hard to do. The insurance his company offers is not the greatest not just that, he oftentimes have to switch companies because his contracts ends or they end up laying off because they do not need everyone that they hired. 

He also cannot get disability even though we filled it out and even sent everything they wanted and needed along with signing medical release forms and they still denied him because they would never come around and accept it and it was a long hassle with it. No one can just go without the money and funding they need to make sure ends are met and the bills are paid. The way they have the disability set up is horrible because it takes years for them to ever get back to you and approve or deny you and you can end up loosing everything just waiting on a response and often times they end up denying you and you end up having to find a lawyer to get help with it so that they will approve it and this also becomes a prolonged process. 

My hope and dream is to be able to make enough money to help him the best that I can so that he does not have to worry about bills or anything else. I want him to be able to take breaks and time for himself instead of forcing himself to work for a company that is just going to replace him when something happens. 

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Worrisome 2025 Benefit cutting

 I normally do not post this kind of stuff over here but because my mind is racing and I am kind of worried not just for my family but others also. 

This will impact me and not only me but everyone a great amount. This is going to impact a lot of families. 

My husband is on Medicaid because he is technically disabled but he works. He only has one kidney and suffers with RA and that makes him swell and his joints hard to move. 

SS will not give him his benefits because of their long rule of thumb and all the other documents that they are needing and the long wait times. 

Don't worry they don't give half the people benefits and they need it. A lot of people have to go through lawyers and attorneys to get their benefits because it takes years to get it started for them to even bother looking at it and then you can get approved or denied and a lot of people get denied even though they really need it. A lot of people do not get enough on SS to actually survive through this economy. They barely get enough to get by. 

My kids, husband and I are on Medicaid. I will be on Medicaid until my youngest kid turns 21. That is just the rule of the state that I live in. I am not complaining because of I am on Medicaid. I am complaining because I am worried. We are a low income family just like all the others that are on Medicaid. This is one of our ways that we can afford seeing doctors without having to worry. This is one of the ways we can afford our medications without us having to go without them. This is really worrisome not only to me but to everyone that is on it and needs it just like those that have medicare. A lot of people are going to get seriously ill and they could end up passing away because they cannot get the treatment that they are needing. 

We are on food stamps. I am not complaining because of this. Everyone has to eat and in this economy, it makes it a lot harder because the minimum wage does not match the inflation and the prices of food. A lot of people are going to feel this collapse. A lot of people are going to suffer because of careless acts. A lot of people are going to get sick, and not have the funds they need to cover it. This is how 2025 is going. A lot of people are in fear, a lot of people are going to be affected by this and they do not care.

 They only want to give the money to their buddies for billionaire tax cuts and fill their pockets from the hard earned money that we put in and gave. 

A lot of people getting laid off and fired from their jobs. Their jobs that they ran for many years to make sure that everyone is stable and could actually try to survive in this world. A lot of people that are qualified that actually want to help the people just for them to get fired and everyone else suffers because of it.  It is only the 3rd month in 2025. 

If you look at other countries, they are so much better, so much advanced. They actually want to help their people everyone can afford things they need and want and they do not have to sacrifice things like we do. 

The American dream is long gone and the American way is also. They try to make America look so much better than other countries when other countries are so much better than America. 

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