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Tuesday, October 6, 2026

Krystexxa update

 Things went really well with the Krystexxa infusion. It took two hours for the infusion and then an hour of sitting to make sure everything was okay. 

The Infusion center was really nice and well knowledgeable. They gave the premeds which was the steroids, benadryl first then they let him sit for about 30 minutes for that to kick in and then they got his IV's ready and got everything going. It was worrisome at the beginning but once things started it went smooth. 

He is suppose to go back every 2 weeks until 6 months and then after the 6 months it will be every 4 weeks instead but it just depends on his Uric acid readings at the blood draws.  

He has already noticed some improvements with his hands. He can some but bend them and close them again. 

 

Krystexxa update

 Things went really well with the Krystexxa infusion. It took two hours for the infusion and then an hour of sitting to make sure everything...